GHPCO Links

On-Line End-of-Life Care Resources

The following is list of on-line resources that may be of interest:

Centers for Medicare & Medicaid Services
The federal agency that administers the Medicare, Medicaid and Child Health Programs.

End-of-Life Nursing Education Consortium
The End-of-Life Nursing Education Consortium (ELNEC) offers courses for undergraduate faculty, clinical end-of-life care educators and other continuing education/staff development educators.

Hospice and Palliative Nurses Association
The purpose of the HPNA is to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice and palliative nursing; and to study and promote hospice and palliative nursing research.

National Hospice and Palliative Care Organization

National Hospice and Palliative Care Organization

National Hospice & Palliative Care Organization
NHPCO provides information and resources to advance the art and science of end of life care.

For information about advance directives,
go to www.mydecisionsmatter.com

Click here For NEW hospice licensure information.

Click here For Hospice Rules and Regulations for the State of Georgia.

Click here For Concerns about Hospice Providers related to Fraud and Abuse,
or call 800-447-8477

Click here For Concerns about Hospice Care Delivery or Patient Treatment.

NOTE: Links will open in a new browser window.
Inclusion in this list does not constitute an endorsement of the content or information contained therein.

AARP: End-of-Life Resources	A guide to end of life resources provided courtesy of AARP.
AgeNet	AgeNet, Inc. operates a comprehensive, national eldercare network to meet the specific needs of the fast growing aging population and their adult caregiving children.
Aging with Dignity	This site is maintained by the publisher of "Five Wishes®" – the advance care planning tool that assists people to discuss their choices and maintain their dignity in the progress.
Alzheimer's Association	An organization dedicated to researching the prevention, cure, and treatments of Alzheimer's Disease
American Academy of Hospice & Palliative Medicine	AAHPM is an organization of physicians and other medical professionals dedicated to excellence in palliative medicine.
American Alliance of Cancer Pain Initiatives	The American Alliance of Cancer Pain Initiatives is dedicated to promoting cancer pain relief nationwide by supporting the efforts of State Cancer Pain Initiatives.
American Board of Internal Medicine	Aims to enhance the quality of health care available to the American public by maintaining high standards for certifying internists and sub-specialists who possess the knowledge, skills, and attitudes essential for the provision of excellent care.
American Brain Tumor Association	The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
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American Health Quality Association	The American Health Quality Association represents Quality Improvement organizations (QIOs) and professionals working to improve the quality of health care in communities across America.
American Medical Association	This site offers news and information to physicians, and doctor locating services and information for patients.
American Society of Clinical Oncology	The American Society of Clinical Oncology (ASCO) is the leading professional organization representing physicians who treat people with cancer. The Society is dedicated to advancing cancer care and research.
Americans for Better Care of the Dying	ABCD promotes social, professional and policy reform to support the opportunity to live meaningfully until the end of life.
Cancer Family Care	Cancer Family Care provides counseling and understanding to cancer patients and their families to help them cope with the devastating emotional impact of disease and loss serving the residents of Greater Cincinnati and Northern Kentucky.
Association of Online Cancer Resources	Association of Online Cancer Resources is an on-line guide to cancer-related information, services and organizations.
CancerSource	The mission of CancerSource.com is to provide comprehensive, accurate, and personalized source of cancer information and services available.
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Catholic Health Association, Supportive Care of the Dying	This is a Catholic healthcare ministry advocating holistic compassionate care where death is integrated as a phase of living.
Center for Advanced Illness Coordinated Care	This site presents healthcare providers with a care coordination model for improving end-of-life care and offers patients and their loved ones guidance and support for dealing with advanced illness and death.
Center to Advance Palliative Care	The Center to Advance Palliative Care (CAPC) is a resource to hospitals and other healthcare settings interested in developing palliative care programs.
The Center for Hospice & Palliative Care	A continuum of health and mental health services for persons experiencing the impact of serious illness and loss.
Children's Hospice International	Children's Hospice International (CHI) provides a network of support and care for children with life-threatening conditions and their families.
CliniWeb International	A project of the Oregon Health Sciences University, CliniWeb is an index and table of contents to clinical information on the Internet. It now allows search terms to be entered in five different languages (English, German, French, Spanish, Portuguese) and has direct links to MEDLINE searches via the PubMed system at the National Library of Medicine.
Council on Palliative Care	This site offers information and resources, answering questions to palliative care.
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The Dougy Center	Through our National Center for Grieving Children and Families, we also provide support and training locally, nationally and internationally to individuals and organizations seeking to assist children and teens in grief.
Dying Well	Dr. Ira Byock’s website addressing issues around end-of-life care.
Education for Physicians in End-of-Life Care	Their mission is to educate all healthcare professionals on the essential clinical competencies in palliative care.
Elder Care Online	Goal is to provide information, education and support to families caring for aging loved ones, especially those coping with Alzheimer's Disease and related dementias.
End of Life Physician Education Resource Center	EPERC provides on-line peer-reviewed resources for education and information sharing.
End of Life Special Interest Group	The End of Life Special Interest Group is sponsored by The National Institutes of Health, US Department of Health and Human Services (DHHS).
End-of-Life Decisions and the Dementia Patient	Article written on end of life decisions.
End-of-Life: Exploring Death in America	An NPR feature with transcripts and resources.
Faith in Action	A National Program of the Robert Wood Johnson Foundation, Faith in Action seeks to combine the resources of local faith community and community organizations, such as hospices, to serve their neighbors.
Georgia Pain Initiative	Serving to improve the quality of life for Georgia’s children and adults affected by pain through education, advocacy, public policy, and the promotion of excellence in clinical practice.
Health Care Ethics Consortium of Georgia	The Health Care Ethics Consortium of Georgia (HCECG) is a network of health care organizations that share a common interest in bringing ethics analysis to patient care and organizational issues. The Ethics Consortium has maintained a strong end-of-life care emphasis throughout its 10 year history, providing education in such areas as palliative care, cultural perspectives and end-of-life pathway models. The Consortium's Task Force report on Medical Futiliy issued in 1997 is available on-line. The Consortium is affiliated with the Emory University Center for Ethics.
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International Hospice Institute	This site provides international information and resources for palliative care.
Journey of Hearts: A Healing Place in CyberSpace	Site combines elements of medicine, psychiatry, poetry, prose and images to provide resources and support to those who have experienced loss, be it acute or long- standing. A "healing" website with resources and support for those who have lost a loved one.
KIDSAID	KIDSAID is a safe place for kids to share and to help each other deal with grief about any of their losses.
Kids Can Cope	This site provides information about support groups for children or teenagers who have a family member with cancer or other serious illness.
Kit's Legacy	Web site designed as a first step toward collecting and sharing stories about the varied experiences of patients who have life limiting illnesses and their caregivers.
Lance Armstrong Foundation	The mission of the Lance Armstrong Foundation is to enhance the quality of survival of those diagnosed with, through, and beyond cancer.
The Leukemia & Lymphoma Society	The Leukemia & Lymphoma Society is a voluntary health organization dedicated to funding blood cancer research, education and patient services.
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Medicare Rights Center	The Medicare Rights Center (MRC) is a national, not-for-profit, non-governmental organization that helps ensure that older adults and people with disabilities get good affordable health care. Help older adults and disabled to get medicare coverage through policy, education, and resources.
The Mesothelioma and Asbestos Awareness Center	The Mesothelioma and Asbestos Awareness Center has long been recognized as the web's leading organization for relevant and authoritative information regarding asbestos and health complications associated with asbestos exposure.
Mesothelioma Web	The Most Comprehensive Mesothelioma Website.
National Family Caregivers Association	NFCA provides services and information for family caregivers.
National Institutes of Health	Access to NIH information including National Library of Medicine resources.
Promoting Excellence in End of Life Care	Promoting Excellence in End-of-Life Care is dedicated to long-term changes to improve health care for dying people and their families.
Run to Remember	Run to Remember provides an opportunity for participants to honor the memory of loved ones. Through the process of training for a marathon or mini-marathon, runners have the opportunity to pay tribute to someone they have lost.
Social Security Administration	Information on Medicare and other SSA benefits.
Volunteers of America	Volunteers of America, one of the nation's oldest, largest, and most comprehensive nonprofit human service organizations helps over one million Americans every year.

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