2020 Virtual Pediatric Forum

“Caring for Pediatric Hospice and Palliative Care Patients and Families with Courage and Confidence”

Date: September 24, 2020

**$25 GHPCO Members/ $55 Non-Members**

CEU Credit Only Available for Registered and Paid Attendees

Due to the impacts of COVID-19, our Annual Pediatric Forum will be a shortened virtual event this year! 

REGISTER HERE!

 This virtual forum is designed to support community hospices interested in expanding services to pediatric patients or those who have yet to venture into pediatric care but are committed to doing so in the future. Attendees will receive an update on the current state of pediatric hospice and palliative care in Georgia, as well as a discussion highlighting the family experience with a child who has life limiting illness with resources provided by the Courageous Parents Network.

Speaker: Blyth Lord

Blyth Lord is the founder and Executive Director of Courageous Parents Network, a national non-profit whose mission it is to empower, guide and support parents caring for children with serious illness and the pediatric providers that care for them. Blyth is also the Executive Director of the Cameron and Hayden Lord Foundation, a small family grant-making foundation whose mission is to advance pediatric palliative care in the United States, as well as fund research of therapies for lysosomal storage diseases. Blyth's daughter, Cameron, and nephew, Hayden, died of Tay-Sachs disease in 2001. In the years following, Blyth has promoted the needs of families caring for children with serious illness and how providers can best meet these needs. She is an involved and vocal advocate for pediatric palliative care.

Drawing on more than 20 years of experience as a television producer (ABC News, Medical News Network, WGBH), she produced the award-winning film, Cameron’s Arc, with the American Academy of Pediatrics to educate doctors in working with families from the time of diagnosis through to the end-of-life. Cameron’s Arc has been distributed nationally as a teaching tool to pediatric residency programs across the United States. She also produced the Parenting a Child with Life-Limiting Illness video with the National Tay-Sachs and Allied Diseases organization, as a resource for parents and the providers who work with them.

These successes inspired the inclusion of parent and provider story-telling and videos that are central to Courageous Parents Network, which she launched in 2014. 

Blyth is an affiliate member of the AAP’s Section on Hospice and Palliative Medicine and a co-chair of the Section’s Parent Advisory Group. She is also immediate past president of National Tay-Sachs and Allied Disease, the patient disease group, where she has helped lead the organization to the threshold of clinical trials for its rare (and still always fatal) diseases. 

 Blyth received her BA in History from Yale College and has a Masters in Education from Harvard. She lives in Newton, Massachusetts with her husband and two daughters.